We Announced the $48.3M Federal Partnership at the White House! [embedyt] https://www.youtube.com/watch?v=3ElaCVvDZfI[/embedyt] It was incredibly special for me to speak at the White House on Wednesday about our funding from the federal government and what it will mean for patients like me. While on stage, I couldn’t help but think back to 14 years ago […]
2023 Philadelphia Citizen of the Year
I am beyond honored to be named the 2023 Philadelphia Citizen of the Year by The Philadelphia Citizen. This recognition is a testament to our amazing team’s work and the support that so many of you have shared with us! It has been the honor of a lifetime to work with our amazing teams at […]
Celebrating 10 Years in Remission!
Reflecting on 10 Years in Overtime – Time I Never Thought I’d Have At Every Cure, we are utilizing artificial intelligence to identify the most promising new uses for existing drugs across all 3,000 drugs and 20,000 diseases and we need your help to make the biggest impact possible! Whether it’s forwarding this email to a friend or […]
A New Chapter of Turning Hope Into Action
Our family grew! We welcomed our second little one into the world On November 5, 2021, we welcomed baby David into the world. He is the sweetest little brother to Amelia. It feels like such a dream to have this incredible family when I think back to when I was on my deathbed 13 years […]
From Chasing My Cure to Every Cure
Inspired by my journey discovering a drug that could be repurposed to save my life, I co-founded Every Cure in September 2022 to unlock the full potential of existing medicines to treat every disease and every patient possible. I had the opportunity to announce Every Cure’s launch during the Opening Session of the Clinton Global […]
New England Journal of Medicine published our paper on Cytokine Storm
I’m thrilled to share that my paper on Cytokine Storms with Carl June, MD, was published today in the New England Journal of Medicine! A “cytokine storm” is an immune response that spirals out of control and occurs with Castleman disease, CART, severe COVID19, and other conditions. We developed the first unifying definition of a […]
First repurposed drug reported to decrease COVID19 mortality
Repurposing existing drugs to treat COVID19 provides our best opportunity to save lives ASAP. As I like to say, we’ve got to teach old dogs new tricks! I know the power of drug repurposing: I’m alive today thanks to a repurposed drug. Given the overlap between COVID19 and Castleman disease, I’ve suspected that treatments used […]
Our team publishes first paper from CORONA project
With doctors and researchers around the world searching for effective treatments for COVID-19, many drugs approved to treat other diseases are being used in hopes that they’ll be effective against the virus, a use that’s known as “off-label.” A volunteer army that Dr. David Fajgenbaum assembled has catalogued every use documented in medical literature so […]
What is a cytokine storm?
You’ve probably seen the term “cytokine storm” in the news a lot recently. That’s because COVID19 is able to unleash a cytokine storm in the most sick cases. As someone who has survived 5 deadly COVID19-like cytokine storms due to idiopathic multicentric Castleman disease and who studies cytokine storms in my lab, I thought I’d […]
Five years worth of cytokine storm research published on the same day
I’m so proud of my team at the University of Pennsylvania’s Center for Study & Treatment of Lymphadenopathies & Cytokine Storms. Today, five years worth of research into mechanisms involved in the idiopathic multicentric Castleman disease (iMCD) cytokine storm, which has major implications for other cytokine storms like COVID19, were published in two high-impact journals. […]